InsaneJournal

Tweak says, "I have an itch."

maya lopez is more than an echo (ashtawawidiwin) wrote in somerealityweb,
@ 2019-09-08 22:50:00

Entry tags:

active: clint barton, active: james rogers, active: tony stark, inactive: emma duval

[filtered against medical types]
Ugh, and people wonder why I don't like doctors. I've only ever been to one that didn't act like I was too stupid to understand how my own body worked and that was at USA Gymnastics, which has its own issues.

(Read comments) - (Post a new comment)

theboyblunder
2019-09-08 07:59 pm UTC (link)

Just cause your ass doesn’t know how to read doesn’t mean I don’t. In the second reply you said “my whole point was that they were all complete wimps” which means you knew when you wrote it that you just wanted to talk shit about the people taking the drug. If you had actually cared about discussing the side effects then you wouldn’t go around calling the people reporting them names. You just want to twist this all around now because Tommy didn’t want to talk trash about his patients’ biological traits to appease you.

Boo-fucking-hoo, a doctor misdiagnosed you so the whole medical field has to be treated like they’re out to get everyone. Have you ever heard of anosognosia? That’s what happens when I, and pretty much anyone else with my condition, goes off medication and stops thinking there is an illness. Then our brains start to atrophy which makes it muy dificil to ponder whether or not our doctor’s advice is reliable. We don’t all have that luxury. And you’re making it a hell of a lot harder for people who already struggle to get treatment by lying about the ones offering it.

(Reply to this) (Parent) (Thread)

ashtawawidiwin
2019-09-08 08:11 pm UTC (link)

So the complete opposite of what he accused me of, which is implying the drug is worse than it was. If he had objected to that it might have been fair, but it's simply not. Because, again, that was a reaction to his utterly stupid response. Just because you don't understand cause and effect doesn't mean I don't.

And you're making it harder for people who are misdiagnosed to get taken seriously, so congratulations both of us I guess.

(Reply to this) (Parent) (Thread)

theboyblunder
2019-09-08 08:41 pm UTC (link)

I understand cause and effect just fine. Tommy standing up for his patients regardless of their biology and assuring them that the trials would help limit those side effects before the release was the cause of you throwing an enormous temper tantrum.

Naw, miss me with that shit. You can get a new doctor if you don’t like your diagnosis. I can’t get a new brain.

(Reply to this) (Parent) (Thread)

ashtawawidiwin
2019-09-08 08:55 pm UTC (link)

No one ever said that the side effects couldn't be further reduced. I pretty clearly wanted there to be more work done on it and said that it was good that work was happening in other places. I'm against them deciding that it's a completely lost cause just because it's not perfect yet.

No, I couldn't. The difference between us is that I want everyone to get an accurate diagnosis and the treatment they need, not just myself and the people with the same condition.

(Reply to this) (Parent) (Thread)

	theboyblunder 2019-09-08 09:09 pm UTC (link)
	No. The difference between you and me is that you're a bitch. (Reply to this) (Parent) (Thread)

	ashtawawidiwin 2019-09-08 09:11 pm UTC (link)
	Thank you. (Reply to this) (Parent)

notyourplayboy
2019-09-08 08:17 pm UTC (link)

Wow. Alright. She mentioned some facts about people in her reality. Stated it quite clearly and mentioned it was promising if outlooks have changed. Dr. Elliot — is that him? He drew words from what she did not say. The projection is insane. And, yeah, she called them “wimps” after he dumped a bunch of shit on her for making conversation. Also, technically, if he champions that research, what does he care if she calls the dudes who couldn’t handle it wimps? If he wants to change some people’s minds about medical professional, speaking kindly and rationally to all regardless of opinion would help.

You have a condition. She is differently abled. Arguing about what exactly here? She has a right to speak, just as the dear doctor did.

(Reply to this) (Parent) (Thread)

fknaudrey
2019-09-08 08:38 pm UTC (link)

Not to escalate the situation here any, but I care if people call the dudes who can't handle hormone therapy wimps since that's 99% of the reason why I haven't started it yet. I guess that makes me a wimp too, huh? Or my mom? Who had to have hormone therapy after both her first and second rounds of cancer treatment and decided to stop because the side-effects combined when the side-effects from chemo were making life miserable for her. I guess she's a wimp too?

(Reply to this) (Parent) (Thread)

ashtawawidiwin
2019-09-08 08:49 pm UTC (link)

Only if those side effects were mild acne and an average of 2lb of weight gain, and if you choosing not to take it meant that other people couldn't either. You'll notice I said that the hormone therapy that's actually prescribed is worse than what they were taking. The risk of longterm fertility loss, depression and irregular heartbeats? Yes, that needs to be sorted out, absolutely. Ideally there wouldn't be any side effects. But that drug was objectively safer than what's already used. Meaning we agree that what's being actually prescribed isn't always a good option, because that's not the one I was talking about, and it's a travesty that a potential alternative to something that can literally kill people isn't being explored.

(Reply to this) (Parent) (Thread)

	fknaudrey 2019-09-08 09:03 pm UTC (link)
	But alternatives are being explored? I thought that was the whole point? (Reply to this) (Parent) (Thread)

	ashtawawidiwin 2019-09-08 09:06 pm UTC (link)
	They are, in other timelines. Not in mine. They completely shut it down because of that trial. I specifically said I thought it was good that they were still working on it in other places. I even said in my very first comment that I was only talking about my timeline and didn't know about others. (Reply to this) (Parent) (Thread)

	fknaudrey 2019-09-08 09:12 pm UTC (link)
	But you see how telling someone "hey this treatment I just said might exist has, in fact, possibly been canceled!" might make someone nervous? (Reply to this) (Parent) (Thread)

	ashtawawidiwin 2019-09-08 09:16 pm UTC (link)
	Sure, but that's still not how it was framed. You're the first person to make that point. Saying "There is a medication that could help. It's not being explored in my world but might be in others, including here" is not fear-mongering and never will be. (Reply to this) (Parent) (Thread)

	fknaudrey 2019-09-08 09:18 pm UTC (link)
	I dunno. Feels a little like having the rug pulled out from under you, is all. Like you have hope one moment and then someone just snags it away because, well, it might not be true in every timeline. What if it's not true here? None of us know anything about this place. It would make me panic. (Reply to this) (Parent) (Thread)

ashtawawidiwin
2019-09-08 09:26 pm UTC (link)

That's a valid point, but it's not the one that was made. The whole reason I was upset is because he wouldn't explain why he didn't like what I said. Literally all I want is to be able to trust that a doctor thinks I'm capable of understanding something and will respect that I might disagree with them, and he is not making me feel that way. It does not make me feel safe, it makes me worry about what might happen if something was wrong and he was the only one available, because I've been in that situation before.

(Reply to this) (Parent) (Thread)

fknaudrey
2019-09-08 09:36 pm UTC (link)

I get it. I've had shitty doctors too. Doctors who don't respect sexuality or gender or even something as basic as pronouns. I just found out that a psych medication I've been on for a year was super not good cause my shitty doctor back home neglected to tell me what it actually did. I feel you.

I also think that maybe this is just an issue of two people who are bad at expressing feelings ~~beyond anger~~ just colliding in a bad way and misunderstanding each other. You took his concerns for his more skittish patients as talking down to you, he took your concerns for the viability of certain medications as trying to pull the rug out. It makes sense, doesn't it?

(Reply to this) (Parent) (Thread)

ashtawawidiwin
2019-09-08 09:46 pm UTC (link)

I tend to think that doctors have a responsibility to be aware of the harm the profession as a whole has caused to some people and understand that when they're speaking as a doctor they're going to be contributing to how people view the medical field, for better or worse. Maybe that's not fair to them individually but it's sure as hell more fair than the alternative. Doctors are far more capable of causing fear than patients are, and I don't think it's really possible to be a good doctor without being aware of that.

And honestly all the people here saying I can just go to another doctor like everyone who needs medical treatment is a fully informed adult who knows when they're not being given good advice with the time and money to shop around and the physical ability to leave is pretty fucking laughable too. Choosing between bad treatment and no treatment is not a decision anyone should have to make, and sometimes they don't even get that.

(Reply to this) (Parent) (Thread)

fknaudrey
2019-09-08 09:54 pm UTC (link)

Quick Q? Did the whole anti-vax thing happen in your timeline? Cause I guess maybe that's where I'm coming from on the panic issue, personally, and if it didn't happen where you're from then that would make a whole world of a difference.

It's my fault for assuming that people are the exact same brand of awful everywhere. But I'm just so used to people - lay people, people on reddit and Facebook, people in coffee shops, whatever - saying the most ridiculous things about medication that, as someone who needs medication to stay alive, I guess I just feel defensive.

(Reply to this) (Parent) (Thread)

(no subject) -

ashtawawidiwin, 2019-09-08 10:35 pm UTC

(no subject) -

fknaudrey, 2019-09-08 10:49 pm UTC

notyourplayboy
2019-09-08 09:04 pm UTC (link)

Again, focusing on her heated response after being torn apart for words she didn’t say. You bring your personal experience to the conversation, but she can’t? She never attacked the study. She was attacked for facts from her time in which some people could not handle certain side effects. The study’s success or lack of success is not because of Maya and any future success certainly won’t be because one person mentioned why some people were unhappy with the study. Anyone else could have said that and not been rebuked so coldly. My teens behave more kindly.

(Reply to this) (Parent) (Thread)

	fknaudrey 2019-09-08 09:09 pm UTC (link)
	I don't see how she was "torn apart", I'm sorry. Maybe I'm missing something? (Reply to this) (Parent) (Thread)

	notyourplayboy 2019-09-08 09:13 pm UTC (link)
	She was accused of fear mongering and talked down to like a child for citing what happened in her time. When she attempted to show those opinions weren’t hers, she was called out on chosen language. What would anyone have her do? To be honest, it looked like he was picking a fight out of thin air. (Reply to this) (Parent) (Thread)

	fknaudrey 2019-09-08 09:15 pm UTC (link)
	I guess I just don't see that. Sorry. (Reply to this) (Parent) (Thread)

	notyourplayboy 2019-09-08 09:19 pm UTC (link)
	Well, as someone with zero invested interest, I did. (Reply to this) (Parent)

theboyblunder
2019-09-08 09:02 pm UTC (link)

I thought I was pretty clear about what I was arguing about.

There’s lots of people who have anosognosia, paranoia, and other symptoms which make getting medical care incredibly hard. It’s not easy to struggle with psychosis and have someone trying desperately to convince you that the medical professionals that you have access to are cruel and untrustworthy. I can’t possibly be the only mentally ill person here so I’m not just saying this for my own sake or because of my own relationship with Tommy.

I went without my medication until he showed up because I didn’t trust any of the other medical professionals even though there’s no logical reason for that. The half life on most other medication isn’t that good and most people aren’t going to be lucky enough to have their own personal doctor show up in the nick of time. It’s shady to inspire fear about the staff, especially from a comfortable position of not needing to be medicated to function.

(Reply to this) (Parent) (Thread)

	notyourplayboy 2019-09-08 09:09 pm UTC (link)
	I am glad you have the help you need, but I hardly call what she said fear mongering for mentioning some people were dissuaded by what some might call “mild” effects. Commercials for medication provoke more fear. (Reply to this) (Parent)

(Read comments) -