InsaneJournal

Tweak says, "you smell like beef and cheese"

maya lopez is more than an echo (ashtawawidiwin) wrote in somerealityweb,
@ 2019-09-08 22:50:00

Entry tags:

active: clint barton, active: james rogers, active: tony stark, inactive: emma duval

[filtered against medical types]
Ugh, and people wonder why I don't like doctors. I've only ever been to one that didn't act like I was too stupid to understand how my own body worked and that was at USA Gymnastics, which has its own issues.

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	fknaudrey 2019-09-08 09:03 pm UTC (link)
	But alternatives are being explored? I thought that was the whole point? (Reply to this) (Parent) (Thread)

	ashtawawidiwin 2019-09-08 09:06 pm UTC (link)
	They are, in other timelines. Not in mine. They completely shut it down because of that trial. I specifically said I thought it was good that they were still working on it in other places. I even said in my very first comment that I was only talking about my timeline and didn't know about others. (Reply to this) (Parent) (Thread)

	fknaudrey 2019-09-08 09:12 pm UTC (link)
	But you see how telling someone "hey this treatment I just said might exist has, in fact, possibly been canceled!" might make someone nervous? (Reply to this) (Parent) (Thread)

	ashtawawidiwin 2019-09-08 09:16 pm UTC (link)
	Sure, but that's still not how it was framed. You're the first person to make that point. Saying "There is a medication that could help. It's not being explored in my world but might be in others, including here" is not fear-mongering and never will be. (Reply to this) (Parent) (Thread)

	fknaudrey 2019-09-08 09:18 pm UTC (link)
	I dunno. Feels a little like having the rug pulled out from under you, is all. Like you have hope one moment and then someone just snags it away because, well, it might not be true in every timeline. What if it's not true here? None of us know anything about this place. It would make me panic. (Reply to this) (Parent) (Thread)

ashtawawidiwin
2019-09-08 09:26 pm UTC (link)

That's a valid point, but it's not the one that was made. The whole reason I was upset is because he wouldn't explain why he didn't like what I said. Literally all I want is to be able to trust that a doctor thinks I'm capable of understanding something and will respect that I might disagree with them, and he is not making me feel that way. It does not make me feel safe, it makes me worry about what might happen if something was wrong and he was the only one available, because I've been in that situation before.

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fknaudrey
2019-09-08 09:36 pm UTC (link)

I get it. I've had shitty doctors too. Doctors who don't respect sexuality or gender or even something as basic as pronouns. I just found out that a psych medication I've been on for a year was super not good cause my shitty doctor back home neglected to tell me what it actually did. I feel you.

I also think that maybe this is just an issue of two people who are bad at expressing feelings ~~beyond anger~~ just colliding in a bad way and misunderstanding each other. You took his concerns for his more skittish patients as talking down to you, he took your concerns for the viability of certain medications as trying to pull the rug out. It makes sense, doesn't it?

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ashtawawidiwin
2019-09-08 09:46 pm UTC (link)

I tend to think that doctors have a responsibility to be aware of the harm the profession as a whole has caused to some people and understand that when they're speaking as a doctor they're going to be contributing to how people view the medical field, for better or worse. Maybe that's not fair to them individually but it's sure as hell more fair than the alternative. Doctors are far more capable of causing fear than patients are, and I don't think it's really possible to be a good doctor without being aware of that.

And honestly all the people here saying I can just go to another doctor like everyone who needs medical treatment is a fully informed adult who knows when they're not being given good advice with the time and money to shop around and the physical ability to leave is pretty fucking laughable too. Choosing between bad treatment and no treatment is not a decision anyone should have to make, and sometimes they don't even get that.

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fknaudrey
2019-09-08 09:54 pm UTC (link)

Quick Q? Did the whole anti-vax thing happen in your timeline? Cause I guess maybe that's where I'm coming from on the panic issue, personally, and if it didn't happen where you're from then that would make a whole world of a difference.

It's my fault for assuming that people are the exact same brand of awful everywhere. But I'm just so used to people - lay people, people on reddit and Facebook, people in coffee shops, whatever - saying the most ridiculous things about medication that, as someone who needs medication to stay alive, I guess I just feel defensive.

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ashtawawidiwin
2019-09-08 10:35 pm UTC (link)

I don't think so? There's pockets of all kinds of conspiracy theories but they're a bit scattered. Some people think there are drugs that secretly create mutants, but others think it's a sign of the end times or that mutants are deliberately having babies with humans to boost their numbers, so even the anti-mutant groups are hardly unified. Between mutants and black magic and Inhumans and aliens and demons and telepaths we might just have too much going on for any particular theory to become dominant for very long, especially if there aren't explosions involved.

And I got no treatment or specialist intervention as a child because doctors didn't believe my father might know his own child better than they did. I have no idea how my life would be different if my parents had been sent to someone who could explain things to them and help them. Most Deaf kids who don't have that early intervention never overcome it. It's a miracle even with as hard as I've worked that I can function in society at all, and I only got that because my circumstances changed and suddenly there was money being thrown around. That, doctors listened to.

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fknaudrey
2019-09-08 10:49 pm UTC (link)

Okay, that changes things a bit. In my timeline, there's been a big movement in the last 5-10 years by certain people - totally average people, without religious or medical exemption - to push for people to stop taking vaccines. It started with some absolute quack fraud saying that the MMR vaccine caused all kinds of issues and then rolled into every childhood vaccine from measles to polio causing a host of problems such a lowered intelligence, physical deformities, cancer, early death, but most often Autism. Instead of vaccines - which do have side-effects and some people are genuinely allergic to some of them and have bad reactions - people are treating with essential oils, high-sodium cabbage juice, and literal bleach. It's horrible and it's really scary and the rates of measles, mumps, and tuberculosis have skyrocketed in the last few years because of it. But people keep using the side-effects to scare people away from getting vaccines which keep everyone healthy. And people are dying.

This is obviously not the same thing as that. This started as a birth control conversation, ffs, but in my timeline there have also been a lot of people pushing to ban contraception, the morning-after pill, to block trans people from getting the hormone treatment they need, and to ban inclusive sexual education in public schools. It's also super scary and literally killing people.

And I'm glad that you found a doctor who would intervene on your behalf. My mom has been battling cancer since the day I was born. The battle is over now, but I had eighteen more years with her than I might have because of really great doctors. You're right, though. Doctors listen to money. It's one of the shittiest things. I'm lucky that we had insurance through the church or my mom would have never gotten the treatment she needed, I wouldn't have gotten the treatment I needed. It would have sucked. Majorly. There's also the fact that doctors tend not to listen to female-presenting people or anyone on the trans spectrum. Which is utter bullshit. So I get it, I do. I'm sorry people have snap reactions - I'm sorry that I have snap reactions - because of past experiences. I just hate thinking that anyone might be scared away from treatment when it's so readily available here.

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